Provides basic information to allow you to participate effectively in coordinating and individualizing care for your child with DMD. You'll learn what experts think about the different stages and how the care needs of someone with DMD changes over time. At the end of the document, there are two sections that can be used for easy reference: things to remember if surgery is planned and things to consider in an emergency situation. This link opens a PDF document.
URL: http://www.parentprojectmd.org/site/DocServer/dmd_us_familyguide_june2010.pdf?docID=10781
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